Posts

MAP Vaccine

Hey all my lovely readers, hope everything is fine with you guys. This time i will be talking about the MAP vaccine and where they are at it and then do my usual update. So the MAP vaccine will target the MAP bug (Mycobacterium avium paratuberculosis) which is found in animals and is passed into the food chain. Doctors have already linked this bug to be the majority of the reason why people have crohns but while the UK governments advisory committee on the Microbiological safety of food insists that this transmission from animals to humans cannot be proven to give someone crohns, despite the bug being heavily noted in milk. How does this vaccine help cure someone with Crohns? Well the vaccine will stimulate the patients immune system into targeting the bug and clear it for the system, even though this is good news a survey was done a while ago stating that 8/10 people with crohns showed that they have this MAP bug in their system, from my view on this that it is not a cure for al...

The types of medication

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Hello once again its me!!! Hope all my readers are doing well? I shall tell you at the end of this blog where i am at with the whole waiting for my colonoscopy. So today i am going to tell you what types of medication that people with crohns may have to take, hopefully explain what they do, how they calm symptoms doing and what side effects could occur whilst on these treatments. So i'll start off with the initial drugs first of all; Corticosteroids (Corty-co-stare-iods) This one is the most likely to be the first type of medication that a person who has been recently diagnosed with Crohns disease, such as myself, i was given a course of steriods that would last over a period of 8 weeks starting with 8 tablets for the first week and then graduly reducing 1 tablet after every 1 week. These types of steriods are commonly known as Prednisolone and Hydrocortisone steriods. The side effects that you could get from this are weight gain, swelling of the face (most comm...

Flare up

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Hi all you lovely people, sorry i haven't been on this for awhile bit busy and all but i am here now and yes i am still waiting for my test results been waiting for 6ish weeks, I have been chasing my specialist for this but all i get is wait for a letter for an appointment to see him, so i guess he has got the results of the biopsy. Anyway, this time i will be explaining what a flare up is, how it starts, why it starts and how it feels. Flare ups is what crohnies have from time to time and we hate it but each different flare up can vary, so one day it can be managable but other days it can bring anyone with crohns to a full stop in anything and reduce us to stay in bed and only move to the toilet when needed. A bad flare up can be so painful it makes me feel like someone has gone inside my belly and started to stab away with a knife, it can drain my energy in an instance! I also tend to feel abit low when this is happening. It also makes me not want to eat just because the th...

Colonscopy eurgh

In my last blog i did promise you lovely peeps that i will do a sort of story about my colonoscopy that i have got coming up. 5 August My poop making package came with two sachets of Moviprep and one sachet of Picolax. Sort now realised that ive got to go through this procedure for the fourth time in my 11 years. By now you would think i should be used to this, well im not its one of those things where you cant get used to, so with my anxiety creeping up on me, i have put myself back on my 'calming' tablets and listening to music to put my mind off it. Whilst im tring to put my mind off it, i am also doing the total opposite by prepping myself on what to eat closer the time to the procedure such as instead of eating solids 2 days before taking the Moviprep i will be eating/drinking soup so my belly doesnt take a bashing whilst sat on the throne. 13 August So the day came where i had to take the satchets which i started with a soup for breakfast and then the rest of the ...

Update

Hi there peeps. In my last blog i promised you that i would tell you what is going on with me. Well as you know i went to my specialist due to all the pain i have been getting lately, he told me that i would have to have a calprotectin faecal test and the outcome of this test would decide whether i would have a colonoscopy test, he has also put me as an urgent case and have informed me that i also have colitis (i will discuss this in a next blog). So i did my poop test and a few days later i received a letter asking for me to book for a colonoscopy test so this is where i am at, at the moment. While recieving this news, i feel pretty annoyed and worried, even though i have had 3 colonoscopies before its the whole procedure of going through a colonscopy. In the UK, the NHS gives people who need a colonoscopy will be given a medicine called either Moviprep or Kleanprep which as it says make you flush your guts out and sometimes can make you vomit loads. So thats it for now, i was...

What does Crohns Disease look like

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This blog i will show you what Crohns disease looks like at a normal, microscopic and various levels. Please do not look at this while eating as it may put you off!! (scroll down to see the rest) As you can see each picture isn't the same. This is because each case of Crohns Disease is completely different this makes it very hard for the specialists, doctors, researchers and nurses to calm the symptoms down. This picture shows Crohns disease on a microscopic level where a knife like, fissuring ulcer is happening in someones intestinal area. As you can see this is a CT Scan which every patient who has this done will have to drink a Barium flow which lines the Digestive tract with a chalky paste that lines up the walls and as the arrow points on the right image shows where inflammation is at. Now your probably thinking why i have added this picture because you can never tell who has Crohns Disease, it doesn't show on the outside, unl...

How to support someone with Crohns

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Being around with someone with Crohns whether they are your friend, family member or just a loved one can be just as hard as having Crohns itself, so in this post i am going to help you how to support someone with Crohns. Is that all your eating? Previous experience whilst out eating with family and friends, is that the constant comment of when you finish eating even though your plate is still half stacked with food. This is not our fault that suddenly we are not hungry enough to eat a full meal, somedays we can surprise you and eat like a pig but most days we wont. (ooh maple syrup!!!) Also, with the subject of eating, its very hard for a Crohnie to know what they can't or can eat for example you search many sites on the internet and they all tell you different foods you can or cant eat but they arent all the same foods. Great advice for you wonderful sufferers out there start making a food plan on what foods trigger and what foods are safe to eat. You look fine! When ...