Remsima and update!!
Hey all, how are we all doing??
Sorry i havent been posting blogs for a while now, sort of been busy buuuuuut i am back and to give you some info on another new biosimilar infliximab drug that i have been trialing called Remsima and to give you an update on where i am at the moment.
Remsima
Remsima (Rem-see-ma) is another biosimilar from the Anti-tnf drug called Infliximab, its a cheaper solution than Infliximab while doing the same job. It is taken the same way as Infliximab and Inflectra via intravenous drip into the arm and helped pushed through using a machine, again same as the Infliximab and Inflectra, this takes roughly 2 hours depending on the patient, at the moment for me it takes 1 hour to put through my body and then a further hour just to see if anything bad happens. The amount that a person takes in one session is depending on the persons weight, i think its 5ml to 1kg, next time i got one is on 1 September 2017, i will double check if i got the measurments right.
The symptoms after having one dose is the usual cold/flu symptoms, achy legs, headaches, random bruises that last for a couple of weeks and what i have noticed lately while taking this drug is that i get tired straight away and im on my 3rd or 4th one, it might be because im getting older that my body takes longer just to get used to it, but touch wood my body isnt rejecting it so far. Also, even though i get tired, i can't get to sleep unless i take some sleeping tablets.
All in all i would recommend taking this drug, as with any type of medication for IBD in general, some work for people and some dont. As this drug is a biosimiliar of infliximab it is used mainly for people with severe IBD but saying this the effectiveness of Anti-TNF drugs is being noticed and with this specialists are refering this to more sufferers as the first drug to take.
Update time
Its been quite a while since i've done this but i will try and keep it short. My general well being has been getting better, i hardly get any pains but i do get the occasional jab in the belly then a quick visit to the toilet to 'unload' but not on a daily basis. Work, as usual, are very good with me making sure i am ok but also let me push myself. Friends and family are supportive when i ask for help and when im looking not at my best they let me rest without being hassled.
With having a illness for so long, it takes a toll on your mental wellbeing and in the past few years, i struggled mentally and in turn suffered with anxiety and depression and was unfortunately put on different types of anti-depression medication, its been a year since i stopped taking them and to help myself from having a relapse, i put my headphones on and listen to music. Now with the unusual illness that is with any IBD is that emotions can have a big impact, so trying to take a step back and just calm down will help loads and ofcourse talking to someone will help alot, i know its hard but trust me it will help. Asking for help is a big step in admitting that you understand that your having a hard time and its not a weakness, i see it as a unique strength.
As always i am here to talk to, i will never talk about anybodies issues, it always stays with me, so if you want to get something off your chest or you want to rant and rave, drop me an email, my email is nathanp123@live.com. I might in the future do a post more on my anxiety and depression when it was more in control of me i guess.
On that note i will end with a quote 'The harder you fall, the heavier your heart; the heavier your heart, the stronger you climb; the stronger you climb, the higher your pedestal' - Criss Jami.
See you soon and thanks for reading, i really appreciate it.
Sorry i havent been posting blogs for a while now, sort of been busy buuuuuut i am back and to give you some info on another new biosimilar infliximab drug that i have been trialing called Remsima and to give you an update on where i am at the moment.
Remsima
Remsima (Rem-see-ma) is another biosimilar from the Anti-tnf drug called Infliximab, its a cheaper solution than Infliximab while doing the same job. It is taken the same way as Infliximab and Inflectra via intravenous drip into the arm and helped pushed through using a machine, again same as the Infliximab and Inflectra, this takes roughly 2 hours depending on the patient, at the moment for me it takes 1 hour to put through my body and then a further hour just to see if anything bad happens. The amount that a person takes in one session is depending on the persons weight, i think its 5ml to 1kg, next time i got one is on 1 September 2017, i will double check if i got the measurments right.
The symptoms after having one dose is the usual cold/flu symptoms, achy legs, headaches, random bruises that last for a couple of weeks and what i have noticed lately while taking this drug is that i get tired straight away and im on my 3rd or 4th one, it might be because im getting older that my body takes longer just to get used to it, but touch wood my body isnt rejecting it so far. Also, even though i get tired, i can't get to sleep unless i take some sleeping tablets.
All in all i would recommend taking this drug, as with any type of medication for IBD in general, some work for people and some dont. As this drug is a biosimiliar of infliximab it is used mainly for people with severe IBD but saying this the effectiveness of Anti-TNF drugs is being noticed and with this specialists are refering this to more sufferers as the first drug to take.
Update time
Its been quite a while since i've done this but i will try and keep it short. My general well being has been getting better, i hardly get any pains but i do get the occasional jab in the belly then a quick visit to the toilet to 'unload' but not on a daily basis. Work, as usual, are very good with me making sure i am ok but also let me push myself. Friends and family are supportive when i ask for help and when im looking not at my best they let me rest without being hassled.
With having a illness for so long, it takes a toll on your mental wellbeing and in the past few years, i struggled mentally and in turn suffered with anxiety and depression and was unfortunately put on different types of anti-depression medication, its been a year since i stopped taking them and to help myself from having a relapse, i put my headphones on and listen to music. Now with the unusual illness that is with any IBD is that emotions can have a big impact, so trying to take a step back and just calm down will help loads and ofcourse talking to someone will help alot, i know its hard but trust me it will help. Asking for help is a big step in admitting that you understand that your having a hard time and its not a weakness, i see it as a unique strength.
As always i am here to talk to, i will never talk about anybodies issues, it always stays with me, so if you want to get something off your chest or you want to rant and rave, drop me an email, my email is nathanp123@live.com. I might in the future do a post more on my anxiety and depression when it was more in control of me i guess.
On that note i will end with a quote 'The harder you fall, the heavier your heart; the heavier your heart, the stronger you climb; the stronger you climb, the higher your pedestal' - Criss Jami.
See you soon and thanks for reading, i really appreciate it.
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