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Showing posts with the label Crohns Disease

Remsima and update!!

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Hey all, how are we all doing?? Sorry i havent been posting blogs for a while now, sort of been busy buuuuuut i am back and to give you some info on another new biosimilar infliximab drug that i have been trialing called Remsima and to give you an update on where i am at the moment. Remsima Remsima (Rem-see-ma) is another biosimilar from the Anti-tnf drug called Infliximab, its a cheaper solution than Infliximab while doing the same job. It is taken the same way as Infliximab and Inflectra via intravenous drip into the arm and helped pushed through using a machine, again same as the Infliximab and Inflectra, this takes roughly 2 hours depending on the patient, at the moment for me it takes 1 hour to put through my body and then a further hour just to see if anything bad happens. The amount that a person takes in one session is depending on the persons weight, i think its 5ml to 1kg, next time i got one is on 1 September 2017, i will double check if i got the measurments righ...

MAP Vaccine

Hey all my lovely readers, hope everything is fine with you guys. This time i will be talking about the MAP vaccine and where they are at it and then do my usual update. So the MAP vaccine will target the MAP bug (Mycobacterium avium paratuberculosis) which is found in animals and is passed into the food chain. Doctors have already linked this bug to be the majority of the reason why people have crohns but while the UK governments advisory committee on the Microbiological safety of food insists that this transmission from animals to humans cannot be proven to give someone crohns, despite the bug being heavily noted in milk. How does this vaccine help cure someone with Crohns? Well the vaccine will stimulate the patients immune system into targeting the bug and clear it for the system, even though this is good news a survey was done a while ago stating that 8/10 people with crohns showed that they have this MAP bug in their system, from my view on this that it is not a cure for al...

The types of medication

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Hello once again its me!!! Hope all my readers are doing well? I shall tell you at the end of this blog where i am at with the whole waiting for my colonoscopy. So today i am going to tell you what types of medication that people with crohns may have to take, hopefully explain what they do, how they calm symptoms doing and what side effects could occur whilst on these treatments. So i'll start off with the initial drugs first of all; Corticosteroids (Corty-co-stare-iods) This one is the most likely to be the first type of medication that a person who has been recently diagnosed with Crohns disease, such as myself, i was given a course of steriods that would last over a period of 8 weeks starting with 8 tablets for the first week and then graduly reducing 1 tablet after every 1 week. These types of steriods are commonly known as Prednisolone and Hydrocortisone steriods. The side effects that you could get from this are weight gain, swelling of the face (most comm...

What does Crohns Disease look like

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This blog i will show you what Crohns disease looks like at a normal, microscopic and various levels. Please do not look at this while eating as it may put you off!! (scroll down to see the rest) As you can see each picture isn't the same. This is because each case of Crohns Disease is completely different this makes it very hard for the specialists, doctors, researchers and nurses to calm the symptoms down. This picture shows Crohns disease on a microscopic level where a knife like, fissuring ulcer is happening in someones intestinal area. As you can see this is a CT Scan which every patient who has this done will have to drink a Barium flow which lines the Digestive tract with a chalky paste that lines up the walls and as the arrow points on the right image shows where inflammation is at. Now your probably thinking why i have added this picture because you can never tell who has Crohns Disease, it doesn't show on the outside, unl...

How to support someone with Crohns

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Being around with someone with Crohns whether they are your friend, family member or just a loved one can be just as hard as having Crohns itself, so in this post i am going to help you how to support someone with Crohns. Is that all your eating? Previous experience whilst out eating with family and friends, is that the constant comment of when you finish eating even though your plate is still half stacked with food. This is not our fault that suddenly we are not hungry enough to eat a full meal, somedays we can surprise you and eat like a pig but most days we wont. (ooh maple syrup!!!) Also, with the subject of eating, its very hard for a Crohnie to know what they can't or can eat for example you search many sites on the internet and they all tell you different foods you can or cant eat but they arent all the same foods. Great advice for you wonderful sufferers out there start making a food plan on what foods trigger and what foods are safe to eat. You look fine! When ...